When the author was warned about how to act around Deborah. How did she do explaining the science of cells and their use to the reader? Did the author recreate Henrietta for you? What sort of person was she? Were you bothered when researcher Robert Stevenson tells author Skloot that "scientists don’t like to think of HeLa cells as being little bits of Henrietta because it’s much easier to do science when you dissociate your materials from the people they come from"? Is that an ugly outfall of scientific research.or is it normal, perhaps necessary, for a scientist to distance him/herself? If "yes" to the last part of that question, what about research on animals.especially for research on cosmetics? do you think Henrietta got the same care as a poor white woman? A well off any color woman? Faith. Do your body parts belong to you once they are taken out? Fairness. What were some of the big issues in this book for you? Ethics. What are the spiritual and religious issues surrounding the living tissue of people who have died? How do Henrietta's descendants deal with her continued "presence" in the world.and even the cosmos (in space)? What are the legal ramifications regarding payment for tissue samples? Consider the the RAND corporation estimation that 304 million tissue samples, from 178 million are people, are held by labs. using dialect/language to portray those voices?ĭid that technique, using people’s words and voices to recall events, make the book more readable? More believable? Could you see it done a different way? Was it important for the author to use the voices of the people she interviewed. What are the specific issues raised in the book-legally and ethically? Talk about the 1980s John Moore case: the appeal court decision and its reversal by the California Supreme Court.įollow-up to Question #2: Should patient consent be required to store and distribute their tissue for research? Should doctors disclose their financial interests? Would this make any difference in achieving fairness? Or is this not a matter of fairness or an ethical issue to begin with? Who did what with the cells, when, where and for what purpose? Who benefited, scientifically, medically, and monetarily? Start by unraveling the complicated history of Henrietta Lacks's tissue cells.
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